David Milster is a resilient, hopeful, community-centric Multiple Myeloma Warrior. One of the key messages David mentions many times is to build a strong support system while going through Multiple Myeloma. You are never alone. Some communities include Multiple Myeloma Warriors Group (a Facebook group) and Patient Connect (where you can connect with patients near you). This blog post delves into David's experiences, from his initial diagnosis to his successful treatment, providing insights and advice for others navigating similar paths. If you are interested in watching David’s video story, then you can find it here.
Introduction to David's Journey
David lives in a small town called Payson, in Arizona. Payson is located roughly 100 miles northeast of Phoenix. With a population of around 15,000, the community is close-knit, making it easy for David to connect with familiar faces during his daily activities. David’s passion for horses and dedication to his family are central to his life. Through this blog, we will explore how David's positive mindset and the support he received played crucial roles in his fight against multiple myeloma.
Recognizing the Symptoms
David’s multiple myeloma journey began with a series of troubling symptoms. He experienced chest pains that prompted him to consult his cardiologist. Dr. Watson, who had previously helped him manage his diabetes and blood pressure through dietary changes. After undergoing tests, David was informed that he was anemic, leading to further investigations by providers.
In a fateful turn of events, while pouring dog food, David suffered a humorous break, which revealed a deeper issue when he sought medical attention. An X-ray showed that his bone had shattered due to a pathological condition, ultimately leading to the diagnosis of multiple myeloma.
The Diagnosis and Initial Reactions
Receiving the diagnosis was a shock to David. He was accompanied by his wife, Judy, during the appointment where oncologist Dr. Larson explained the situation. Despite the daunting news, David resolved to approach his cancer journey with a positive attitude, focusing on the importance of staying proactive and optimistic.
Beginning Treatment at Mayo Clinic
David was referred to the esteemed Mayo Clinic in Arizona, where he began chemotherapy shortly after his diagnosis. His treatment plan included a combination of medications, including ird, ixazomib, lenalidomide, and dexamethasone. Despite initial hope, David faced setbacks as his treatment did not yield the desired results.
Facing Challenges and Embracing Support
Throughout his treatment, David encountered numerous challenges, including a severe bout with COVID-19 that resulted in pneumonia and thrush. This period was particularly difficult, as he struggled with the side effects of his medications and the emotional toll of his diagnosis.
In the midst of these challenges, David's support system proved invaluable. A meal train organized by friends and family provided regular meals, allowing David and Judy to focus on his recovery without the added stress of cooking.
Exploring New Treatment Options
After several chemotherapy regimens and a stem cell transplant that did not achieve the desired results, David's oncologist suggested the possibility of CAR T-cell therapy. This innovative treatment option offered renewed hope, and after a month of preparation, David was approved for the therapy.
Asking providers about new treatments, doing your own research online, and even using tools like knowledge connect may help.
The CAR T-Cell Therapy Experience
David underwent CAR T-cell therapy, which involved a rigorous process of collecting his T-cells, modifying them in the lab, and then reintroducing them into his body to target cancer cells. The recovery process was challenging, but after a few days, David began to notice significant improvements in his strength and overall well-being.
Celebrating Remission
After his CAR T-cell therapy, David received the life-changing news that he was in remission. This milestone was a testament to his resilience and the effectiveness of the treatment. David emphasizes the importance of staying positive and being open to exploring different treatment options, as advancements in cancer research continue to evolve.
Lessons Learned and Advice for Others
Throughout his journey, David learned valuable lessons that he wishes to share with others facing similar battles:
Stay Positive:Â Maintaining a positive mindset can significantly impact your outlook on treatment and recovery.
Seek Support: Don’t hesitate to lean on friends and family. Accept help when offered, as it can ease the burden you carry.
Be Proactive:Â Take charge of your health by asking questions and exploring all available treatment options.
Utilize Resources:Â Engage with support groups and online communities to connect with others who understand your journey. Join multiple myeloma Facebook groups like Multiple Myeloma Warriors Group
Plan Ahead:Â Consider making arrangements for end-of-life care if necessary, but do so with the intention of living fully in the present.
Connect with Other Patients: Patient Connect allows you to meet people near you, and with similar healthcare journeys.
Connecting with the Community
David's story serves as an inspiration to others in the multiple myeloma community. He encourages individuals to reach out and share their experiences, as it fosters a sense of connection and support. David can be contacted via email at Davidmilster20@gmail.com for those seeking to learn more about his journey or to share their own stories.
Conclusion
David Milster's journey through multiple myeloma exemplifies the power of positivity, support, and resilience. His determination to fight against cancer, combined with the love and assistance from his community, has led him to remission. For others facing similar challenges, David's story is a reminder that hope and healing are possible, and that staying connected with loved ones can make all the difference.
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