Introduction
Most people diagnosed with multiple myeloma are 65 years or older. Gemma, is on the younger side, and was diagnosed in her late thirties. In this blog, we explore the inspiring story of Gemma Seager, a personal trainer turned advocate who shares her experiences with this rare form of blood cancer. From her initial diagnosis to her journey towards remission, Gemma's story highlights the importance of community, resilience, and having an extremely positive mindset. To watch her full video story, check it out here.
Background: The Diagnosis
Gemma's journey began in the summer of 2020 when she was working as a personal trainer, during Covid-19. At the end of August 2020, Gemma slipped while lifting weights, and it really hurt. She figured the pain would go away, but long story short, it only got worse. By Christmas 2020, she could barely move. It got to the point where she had to eat standing up, couldn’t brush her teeth, and eventually, Gemma got an MRI in May. When they did the scan, her vertebrae looked like a “pancake” per Gemma. Then, in June, Gemma met with the hematology department, and they said she had multiple myeloma.
The Treatment Journey
Once diagnosed, Gemma faced the daunting task of navigating her treatment options. She underwent induction therapy, which included medications such as Velcade, lenalidomide, and dexamethasone. Each treatment brought its own set of challenges, particularly with side effects that affected her daily life.
Gemma's treatment plan also included a Stem Cell Transplant (SCT), which she underwent in December 2021. The process was intense as Gemma recalls, involving high-dose chemotherapy and the lengthy recovery period in the hospital. Despite the hardships, she remained focused on her goal of achieving remission.
Embracing Positivity and Resilience
Throughout her journey, Gemma emphasized the importance of maintaining a positive mindset. She recognized that while the situation was difficult, dwelling on negativity would not change her circumstances. Instead, she chose to take control of what she could, focusing on her health and well-being. We find a similar mentality within the Multiple Myeloma Warrior Facebook Group. Started by Alan Stephenson, the group is optimistic, strives to help each other – and serve as a Facebook community for patients and caregivers all in the same fight.
Gemma's experience with meditation and positive affirmations played a crucial role in her mental health. She encouraged others to adopt similar practices, highlighting that even small steps towards positivity can make a significant difference in coping with a cancer diagnosis.
The Power of Community Support
Gemma's journey was not one she undertook alone. She found immense support from both online and offline communities. Social media, particularly Instagram, became a platform for her to connect with others facing similar challenges. Through her posts, she not only shared her experiences but also fostered a sense of belonging among those affected by multiple myeloma. Specifically, the Multiple Myeloma Warrior Facebook Group is one supportive community.
However, Gemma recognized a gap in support for younger individuals diagnosed with myeloma, Gemma co-founded a Facebook group called "Too Young for Myeloma." This community provides a space for younger patients to share their experiences, concerns, and advice, addressing unique challenges that may not be relevant to older patients.
Advice for Others on a Similar Path
For those who find themselves newly diagnosed or in the midst of treatment, Gemma offers several pieces of advice:
Take it one step at a time: Focus on the present and tackle one challenge at a time rather than overwhelming yourself with the entire journey.
Be your own advocate: Don’t hesitate to ask questions and seek clarity from healthcare professionals. Your health is paramount, and understanding your treatment is essential.
Build a support network: Surround yourself with people who understand your journey. Whether through online communities or local support groups, connecting with others can provide comfort and insight.
Embrace positivity: Cultivate a positive mindset through practices like meditation and affirmations. Acknowledging the good in each day can help balance the challenges.
Common Misconceptions and Realities
Many people hold misconceptions about cancer and its impact on life. Gemma highlights that while the diagnosis may feel like a setback, it can also serve as a wake-up call to appreciate life and its moments. It is essential to remember that everyone’s journey is unique, and comparing oneself to others can be counterproductive.
Gemma also emphasizes the importance of self-care. It is okay to take a break and focus on one's mental and physical health. The journey through cancer treatment is not a race, and taking time to rest and recover is crucial.
Looking Forward: The Journey Continues
Today, Gemma is in remission and continues her advocacy work within the multiple myeloma community. She uses her platform not only to share her story but also to raise awareness about the disease and the importance of early detection and treatment.
Gemma's journey exemplifies the power of resilience and the impact of community support. Her story serves as a reminder that while the road may be challenging, there is hope, healing, and a community ready to support those in need.
Conclusion
Gemma Seager's journey is a testament to the strength of the human spirit. Through her struggles and triumphs, she has emerged as a beacon of hope for others facing similar battles. By sharing her story, she not only raises awareness about multiple myeloma but also inspires others to advocate for themselves and seek the support they need. Be sure to join communities like Patient Connect, where you can meet other people who have multiple myeloma.
As we conclude this insightful journey through Gemma's experiences, let us remember that we are never alone in our struggles. Together, we can create a community of support, understanding, and hope.
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